Sorry for not being able to post before today. Our computer is being blocked by something in the hospital and hasn't allowed us to check emails or anything requiring a log in for 2 days. Fortunately, one of the nurses is letting me borrow the COW (computer on wheels).
Annabelle is still doing well after her blood transfusion. She actually decided to see what it was like to have 100% oxygen sats last night (not good for her little heart either). But, she didn't stay there but for a second and has kept her sats around 80-86%...numbers we like! The attending MD PC this morning told me that "if it ain't broke, don't fix it". Mommy worries about everything and is wanting to make sure we have all our questions answered before going home. Yep, I said going home! We were told this morning to plan on either Monday or Tuesday! Annabelle is having a g-tube put in on Friday morning (either 6 or 8am as cardiac anesthesia is usually first case). She will begin clear liquids like Pedialyte on Saturday morning and will hopefully be up to full feeds of Mommy's milk by Saturday evening. Once we learn to take care of her and her new equipment, then we'll be on our way home!!!
Continue to keep praying that Annabelle's second surgery go well and she continue to progress nicely. This past month has been a struggle but it is so comforting to receive calls, postcards, gifts, and more. I have had every intention of writing thank you notes for the past month but time hasn't allowed for much other than loving our little angel. Please know how much all of you mean to us and how dear you all are! As soon as we figure this computer thing out, we'll be posting more pictures to enjoy.
12 comments:
Scott, Rebecca, Wyatt and Annabelle,
I am just so excited and thankful to hear such good news. God and the skillfull staff at MUSC have done their work and now she is ready to come home! I can't wait to tell Molly and Jed! They will be so excited.
Love, Laura
Coming home! I bet that sounded so good to hear! We are so excited to hear it too! We have all missed you so much! JC has been playing with Scarlett at MOPS but he said he missed Wyatt.
Thank you for your continued updates of little Annabelle, with everything going on I just don't know how you do it! We continue to pray for your family and will count down the days with you!
Love-
Karen,Nathan,Sarah,JC and Emma
We are very excited for you guys. We know you can't wait to get home. We will be praying for Annabelle on Friday morning during her surgery! We can't wait to see more cute pictures. :)
Love, Joe and Kim
Yea! Great news on the homecoming! We will pray for an uneventful surgery on Friday and a trip home to Columbia at the beginning of next week! Can't wait to take some beautiful pictures of your family! Love, Gretchen
Hi! I got your blog frm Kerri and Mary Clare Pennington. My daughter, Emerson has HLHS. We are coming to MUSC Wednesday for her second surgery and we know what a rollercoaster this can be. We pray that you all will be home soon! Please take a look at our site: www.carepages.com
Her page is EmersonBanksMay
God Bless!
Erica May
I know it is hard to put hert through another surgery but it helped my son a whole lot. He had a permanant g-tube put in at 2 months and it was able to be removed at 2 1/2 years. It is a blessing to be able to get your child home. My son was born with HRHS and ended up at 8 months having a heart transplant. God is great and he will show you he is there no matter what.
That is wonderful news! I am so glad all of you maybe coming home next week. We will continue to pray that God will make the transition smooth. Will also pray that the adjustment will go smoothly. Praise God!
Jason and Leigh Ann Gandy
So glad to hear you will all be home together soon!! God is so good and will still continue to Bless and heal you there. Our prayers will be there to cover your needs as they arise. Love from North Carolina.
We are so happy to hear that the transfusion went well and we are going to add extra prayers Friday for her surgery. Please give her a big kiss from us!
Leslie Ballard
President
Saving Little Hearts of SC
leslie@savinglittlehearts.com
How wonderful that is!!!! I know that y'all are just itching to get back home!
Prayers, heart hugs, and love still coming your way!
Betsey, Cooper, & Russell
Hi Scott, Rebecca, Wyatt and Annabelle, this is Cindy ,Alex's other grandma, and just wanted you to know that we are praying for all of you and that the transition home is a smooth one. I worked at MUSC for 7 years on the Ortho floor and know that amazing blessing happen there, glad to hear the good news,,Take care,
IN HIM,, Cindy Cross
Hi Rebecca, Scott, Wyatt, and Annabelle,
That is great news and we are all praying for the Lord's hands to hold all of you... take care and we are praying for you,
Alex's other grandma Cindy
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